Perinatal Palliative Care, an initiative of Catholic Health Australia (CHA), is the first of its kind in Australia.
The aim of the website is to give families information about a range of conditions, advice on where they can find help and also to share stories of people who lived through the experience and are thankful for what has been described as a bittersweet journey.
"Families need to receive the best possible medical advice they can, but they also need support from people who have experience in dealing with the emotional aspects of preparing for the birth of a child with a life limiting condition. Through this project, we have been able to hear from parents who have made the decision to continue with the pregnancy and share the joys and sorrows that the experience created for them," said Mr Martin Laverty, CEO of CHA.
The website was developed as a collaboration of hospitals that provide perinatal palliative care services. It provides educational information for parents and health professionals, a useful list of services and a range of stories and personal experiences about perinatal palliative care.