Alzheimer's Australia thanked the Minister for taking part in a number of the 16 consultations that were held around the country and the opportunity provided by these consultations to empower people with dementia and family carers to tell their stories. CEO of Alzheimer's Australia, Glenn Rees, said the overwhelming feedback of those consulted was that the aged care system is not working well for people with dementia, and even less so for people from diverse communities. The report found that consumers have no clear pathway on how to access services and once consumers do find some support, it is often inflexible and cannot cope with the special needs that people with dementia and their carers require.
"There is a dramatic contrast between the experiences of the people with dementia and family carers who benefitted from timely diagnosis and referral to services, and the overwhelming majority of those who were traumatised by poor diagnosis, lack of information and care services that had next to no understanding of dementia," Mr Rees said. "People with dementia and their carers don't know where to turn to receive services and support that will actually help them even though dementia is a core function of aged care services with over 50% of aged care residents with a diagnosis of dementia.